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EVERYLIFE FOUNDATION FOR RARE DISEASES
EVERYLIFE FOUNDATION FOR RARE DISEASES
DC · Disease Research · EIN 264614274
12
Executives Disclosed
$7.0M
Annual Revenue
$6.2M
Total Assets
1.4:1
Internal Pay Ratio
EVERYLIFE FOUNDATION FOR RARE DISEASES has 12 executives with disclosed compensation. The highest-paid executive, Julia Jenkins (President & Executive Dir.), received peak total compensation of $296,175. The sector average for Disease Research executives is $215K.
Top Executive Compensation Over Time
Executive Compensation
| Name | Title | Peak Comp. | Latest Comp. | Years | vs. Household |
|---|---|---|---|---|---|
| Julia Jenkins | President & Executive Dir. | $296K | $296K | 2016–2023 | 3.9x |
| Anne Kennedy | Policy & Advocacy | $280K | $280K | 2020–2024 | 3.7x |
| Annie Kennedy | Policy & Advocacy | $249K | $249K | 2021–2022 | 3.3x |
| Michael Pearlmutter | CEO | $210K | $210K | 2024–2024 | 2.8x |
| Megan Pinegar | COO | $205K | $205K | 2020–2024 | 2.7x |
| Jamie Sullivan | Sr. Dir of Policy | $164K | $164K | 2021–2024 | 2.2x |
| Edward Brasfield | Sr Dir of Develop | $142K | $0 | 2020–2024 | 1.9x |
| Shannon Von Felden | Sr Director of Adv | $142K | $0 | 2023–2024 | 1.9x |
| Mary Roth | Communications | $134K | $0 | 2022–2022 | 1.8x |
| Britta Dornan | communications | $130K | $0 | 2020–2022 | 1.7x |
| Carol Kennedy | DEVELOPMENT | $129K | $0 | 2016–2020 | 1.7x |
| Max Bronstein | Dir of Advocacy | $108K | $0 | 2016–2016 | 1.4x |
Annual Summary
| Year | Executives | Avg. Comp. | Highest Comp. | Total Payroll |
|---|---|---|---|---|
| 2016 | 3 | $152K | $152K | $152K |
| 2020 | 6 | $192K | $211K | $384K |
| 2021 | 6 | $225K | $275K | $676K |
| 2022 | 6 | $222K | $262K | $665K |
| 2023 | 6 | $244K | $296K | $733K |
| 2024 | 6 | $215K | $280K | $859K |
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